Aaron was swimming in late July at a water place in Preston Idaho and they happen to have a pool there that is not chlorinated or anything (In fact you can see the moss and slime growing in it) It really isn't pleasant! Well a kid there filled his water gun up with water from that pool and squirted Aaron in his right ear. For a few weeks Aaron had a hard time hearing and thought that maybe he had a small infection. After much persuasion from me he finally went to the doctor to find out. What was discovered is that he had what is called a colesteotoma. This is where a part of your ear drum balloons inward and if it goes untreated can eventually grow into your brain and kill you! (Wow, the doctor didn't make it sound that bad!) I
t is similar to a tumor. Anyway, after seeing an Ear, Nose and Throat doctor it was determined that yes he has a colesteotoma(They aren't that common) and that surgery would be needed. We aren't really sure what causes them only that people that have a history of Ear and Nose problems are more prone (which Aaron has had both).
t is similar to a tumor. Anyway, after seeing an Ear, Nose and Throat doctor it was determined that yes he has a colesteotoma(They aren't that common) and that surgery would be needed. We aren't really sure what causes them only that people that have a history of Ear and Nose problems are more prone (which Aaron has had both).So we scheduled Surgery and arrived at the hospital at 5:30 am. The doctor assured us that the surgery would be easy and only take him about 2 hours to complete. After 4 1/2 hours the nurse came in and told me that Aaron was doing great and that the surgery took longer than expected (duh) and that they were just now closing him up so it would be another 15 mins. Well 45 mins. later the doctor finally came in and told me that he was doing very well and made it through surgery very good. He said the the colesteotoma was much worse than they had expected and that it had grown and intertwined itself for a c
onsiderable way up into his head. One side of Aaron's ear bone was eroded away and so the doctor was able to take it out and flip it around and put it back in (ouch!) The doctor seemed really pleased and that everything is good to go. Now the waiting game begins and it will be a couple of months before we know if Aaron has to have another surgery, or if everything went great. We also won't know for a month or so if he will regain full hearing in that ear. The doctor seemed sure that he would eventually have hearing and that he would be able to rebuild it.
onsiderable way up into his head. One side of Aaron's ear bone was eroded away and so the doctor was able to take it out and flip it around and put it back in (ouch!) The doctor seemed really pleased and that everything is good to go. Now the waiting game begins and it will be a couple of months before we know if Aaron has to have another surgery, or if everything went great. We also won't know for a month or so if he will regain full hearing in that ear. The doctor seemed sure that he would eventually have hearing and that he would be able to rebuild it.We are grateful for that little boy who squirted Aaron because if it wasn't for him we wouldn't have found out about this for a long time and the whole situation could have been a lot worse. We are definitely blessed!
5 comments:
poor aaron! i hope you are feeling better.
hey
i have clostetoma too i had it in my right ear and i had like 5 surgerys on it and now i am only fifteen and i am going in to my 6th surgery and this time it is on my left ear i just found out i had it like 2 weeks ago and now i am about to have my surgery i may end up going completly deff...i am very scared....well i hope u do not have to have any more surgerys on your ear b/c i kno what a drag they are so Good Luck
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GOD BLESS YOU!!!!
carly
Hey my name is Jared i also have had colesteotoma. I had it at a time that they knew little or nothing about it. I have had 48 sugeries to correct the problem and i have have be free of it for 9 years and i have lost the hearing in my right and i have little left in my left. it is very scray but hang on guys if i could do it when i was 2-13 the rest of you can make it through. Thoughs who get things like this and live and back when i had it you had a 3 out of 4 chance to die you are truely blessed should you survive because it gives you broader sight on life and makes you appreciate things just a little more. So come on guys and girls keep on trucking you can beat this crap.
My father had a colesteotoma at 35 in 1953 and had a mastoidectomy. My brother was discovered to have a colesteotoma at age 8 in 1958. I was 40 when the doctor discovered mine. That was in 1987. He performed a partial mastoidectomy and I haven't had another surgery since. I was told it was caused by a defective Eustachian tube, a genetic thing. The Eustachian tube was too small for the natural drainage of the ear thus over time, a colesteotoma formed. I have had fungous infections in the ear since and have a loss of hearing. Linda
We discovered my son had a colesteotoma when he was about 18 months old. They operated on it and that went well. He continues to struggle with glue ear and ear infections although these have got better as he gets older (he's now 4). I understand that 30% of colesteotomas reoccur within 5 years. We have to keep going to the specialist to check his ears out for signs of reoccurance. If you have had one and are not going for check ups perhaps you should....
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